The story behind SeizAware

It was a painfull experience. His eyes went up, his head went down. Briefly.

Then again. And again. For minutes.

Atypical absence seizures. Changing in their appearance for the last 16 years with long happy years of none (and no meds either then).

We've tried many things and found out what works and sometimes just isn't enough. But that's a long story that will be published here in the future.

The thing is, a few times he has experienced generalized seizures. During sleep.

Perhaps more times and we couldn't know as parents sleeping in the next room. Even though our doors were open just to make sure we could.

I love information technology. So I was wondering. Is there anything that could help out?

There is. Like OpenSeizureDetector. Free, open source. Fantastic.

Except it's complicated and crashes. Because one developer cannot sustain such app for long time for free.

It is simply impossible. I know, I'm in IT for 30+ years.

And there are others, paid. But awfully expensive or awfully government-funds-developed projects that will collapse once the money is out.

That's why I've decided to build the app and supporting system that tries something else. Create a community with larger mission and vision.

I hope this community helps.

You, your family. My son, my family.

In the end I wish we all find the solution to control the seizures and enjoy our lives seizures free.

Dušan Vrban
SeizAware founder